Thursday, May 28, 2009

When I get my casts off...

"Hey Mom, I tell you something. When I get my casts off, I go to swimmin' pool, I put my gobbles on...."


Over the past couple of weeks, Amelia has been telling EVERYONE what she will be doing once she gets her casts off. She starts out like this, "Hey Mom, I tell you something..." and then proceeds with a list of things that she will be doing once that cast is off. It's very endearing until she does it four times in a row....during bedtime. I call that a ploy to put off going to bed, Steve doesn't. He encourages the conversation to the point of, let's say, delirium or is hysteria the word I'm looking for? Anyhoo, it's her thing...this is a video conversation she was having with her Auntie Candy. She didn't say, "I tell you something..." I never seem to be able to catch that part.

The past few weeks have gone relatively smooth. We got into a routine and I even managed to take the girls out to a couple of places with any mishaps. The biggest thing was all the stares we would get. I guess that HUGE purple arch between her legs and those purple casts were just too much for people to ignore. I started covering Amelia with a blanket, that helped. The only problem is the heat~the poor child was constantly hot. We've had the air cranked at our house for several weeks now (much to my dismay). We haven't been able to take Amelia outside until the sun goes does, etc. So being couped up in this house has been challenging for all of us. But we made it through it.

Ready to roll to St. Louie

Yesterday, we returned to St. Louis and the cast was removed. My sister made the drive with me and the girls. It's a tough trip to make in one day, but we did it. The took us into the exam room right on time and the cast saw quickly followed. Amelia is familiar with the saw, she's had several sets of casts removed. But this was different...that Spica was thick and it took about 20-25 minutes to get that sucker off! But hearing that final "pop" with the cast cracker, was music to my ears. Not so much for Millie! She was very nervous, scared, etc. I guess we still had one of the cleanest casts ever. I didn't think so since we had a couple of "incidents" over the past couple of weeks. But I guess that's nothing compared to what most kids do to their casts. All I can say is that I would have probably snapped if her cast smelled really bad for that amount of time. Thank goodness she was potty trained!

Very concerned right before the saw starts


Yes, she is screaming, but not in any pain and that is the "Arch" coming off!

Final snip and snap before the top of the cast is removed.

Kristina, the nurse came in to check the flexibility of her foot and things went to "heck in a hand basket in a hurry". Yep, the wailing and screaming began and I was scrambling for pain meds. Since this isn't my first trip to the rodeo, I made sure I packed the "leftovers" from the surgery~just in case. So I started grabbing bottles and syringes. I gave her what I thought was some liquid oxy and she started to settle down pretty quickly.

Waiting for her new harness....

The harness fitting was rather interesting and you'll see why when you see the harness. It's a rather odd device that will hold her legs out in the position that they have been in for the past six weeks. I guess it's not so comfortable to go back to the way things were right away so this device will give her support and comfort for the next couple of weeks. She wears it 24/7 for two weeks. She can come out for baths and small range of movement exercises. We were excused with some instructions and I started to pack up all the things that found their way out of the diaper bag over the past hour. Some of those "things" was the medicine that I brought with me. As I grabbed the bottle from the counter, I happened to glance at the label. Well, I thought I gave her oxycodone for the pain, when in actuality I gave her Valium. Yep, nominate me for mother of the year. Needless to say, by the time we left the office, Amelia was singing to her hands and very mellow!

After about an hour, we were ready to hit the road again. Everyone took a potty break and Amelia spent some time at her favorite "ball roll". We loaded up the car (after about 15 minutes of rearranging, packing the wheelchair etc) and got back on the road. The girls were asleep within 10 minutes~thank the Lord!

The drive home was pretty uneventful until we got to Indianapolis. Amelia announced that she needed to go potty. I found a McDonald's and whipped "Betty" off the road for a quick stop. I ever so carefully removed Amelia from her car seat and proceeded to the bathroom. It's safe to say that I developed a certain "system" for toileting over the past six weeks. It's also safe to say that system is no longer effective and I discovered that a little too late, like when I was standing in the bathroom stall with a limp toddler in my arms trying to figure out how I was going to get her out of this harness and sit her on the toilet. With the Spica, all I had to do was remove the diaper from the outside of the cast and sit her on the potty. Wellllll....now I need to FIRST remove the harness and then the diaper and THEN sit her on the potty. I got through all of that, but then I have to deal with Amelia being terrified and clinging to me for dear life. So much so, that I had to ask her to loosen her grip so I could breath. It goes without saying, the potty break was a complete disaster and we returned to the vehicle without Amelia relieving herself. I promptly gave her some pain meds and started back on the road.

Once we got home, unpacked everything and got settled. I carried Amelia upstairs to get ready for bed. It was too late to go through all the new care instructions with Steve, so we brushed our teeth and went to bed. Giggsey was very curious about Amelia's new apparatus. He was determined to protect her as soon as she came home. I was afraid he would crawl into bed with her for awhile.

Giggs, keeping watch...

Sleeping went well. Amelia woke up at 6:15 and I gave her Tylenol. After about an hour, I got her up and decided to give her a much needed bath. I knew it would be challenging and it was. She is very scared coming in and out of the harness. She doesn't want to be moved at all and cries whenever I try to move her legs and feet at all. I praying that diminishes as she becomes accustomed to not being in the Spica.

All the New Stuff she will wear for the next two weeks

Still has big smiles for Mama

She is now sleeping on the sofa. She has no interest in food right now and she does weigh a big whopping 27 lbs. She is light as a feather without her cast and harness. She feels so tiny and frail in my arms. I'll be glad when my Tiger returns. I thought she would be rearin' to go, but I guess that will be a little while coming. The next few days will be rather long since I can't see taking her out anywhere. It's like starting all over. Oh well, it's rainy today anyway and the house could use some work. There's always a bright side to everything. Whenever I leave that doctors office, I always stop and thank the Lord for the many blessings in my life and for the health of my children. Millie may seem to have so much going on, but I'd rather have this than some of the other things I witness there. You know what they say, everyone throws their troubles into a pile and you pull any one problem back out of that pile. You'll be glad to take your own problem back than to have to deal with someone else's problem. Such a very true statement!

Off to tend to the chicks and the hen house....until later...

5 comments:

Elizabeth Bergeron said...

Thanks for the run down of how your day went. The new harness looks less difficult than the cast for her. Her harness looks very much like my friend who's daughter is the hockey player. Time is the best healer now. She will come around. When she is up to it, bring her over to swim, that will be good therapy. :)

Karen said...

Hurray! You will be amazed at the rapid progress she makes out of the cast. Bath time was difficult at first for us as well, mostly because our daughter's back muscles were very weak from nearly 16 weeks in a spica- so I went and purchased a plastic booster chair that could be placed in the tub - and placed a towel over the chair for added comfort- this helped for the first week until she gained more confidence and control over her back muscles -
(And as a disclaimer- No, the booster is not intended for the bath- for obvious reasons- but it was a great bath-time helper.)
Blessings to you all!

Karen said...

Kim- you can email me at:
mkcmorrisinoh@sbcglobal.net

I would be happy to share anything with our spica experience!

Blessings!
Karen

Sally-Girl! said...

Thank you so much for the informative post. It is helpful for to know what to expect. I am concerned about the weight loss. Bryson can not lose any more weight. He is 5.3 and only 26 pounds.

We see a top hip doctor in Oakland next week and then fly to St. Louis on the 21st of June.

Take care

Pamela said...

It's been so long since I've visited here and I have to say, little Amelia is so darn adorable! I LOVE her voice. It'll be great when she gets to go swimming!