Tuesday, November 18, 2008
One week left....
Friday, November 14, 2008
Holy Baptism
After two cancellations, trying to arrange numerous schedules and not being successful, we finally had Amelia baptised on September 21, 2008. We schedule this event two times before and had to cancel both for various reasons, surgeries, casting etc. I decided I'd like to get it done before the casting and surgery this fall and set out to find a date. Unfortunately, Matthew was away at school, so we had to go forward without him. We have three amazing pastors at our church, so I never have a preference on who does the baptism. I just call the office, ask for dates only, no pastor schedules and we get who we get. Well, it seems that of all the times, our extension pastor, Jenn Lucas, was going to be at the main campus on this date and she performed the baptism. It was lovely and a long time coming. Amelia did very well and Elise was a little more than chagrined that she was not up on the big screen in front of the congregation. Fortunately, the very last photo was one of both of the girls at the beach, it's one of my favorite photos of them and I'm so happy they included it in the slide show.
We had the family come to the house afterwards for a nice brunch and it was a perfectly lovely day. We even had a few friends stop by to congratulation our girl.
So Amelia has had her first sacrament. I will continue to pray that she will experience many more.
Wednesday, November 12, 2008
Look at me....return trip to St. Louis
Friday, October 24, 2008
Button, button, who's got the button????
Wednesday, October 22, 2008
Two weeks down....two~four weeks to go
We've gotten through our first two weeks with the casts, but not without incident. I can't blame it all on Amelia~I'm also to blame.
Back to the trips. I decided to try the trip on our own and was delighted at the outcome. I was blessed to see a different side of my daughter when she was by herself. We were able to bond in a new way and I fell in love with a child that I had not seen before. So when people say that children act differently when they are without their siblings, I couldn't agree more. So, I've taken this opportunity to travel alone and get to know my Millie Moo in a different way. It's been such a blessing!
Tuesday, October 14, 2008
You signed up for this....(my rant for the day)
Friday, October 10, 2008
ATTT Surgery
Amelia had her ATTT (Anterior Tibial Tendon Transfer) surgery this week. Dr. Dobbs was very happy with the surgery and the flexation of Amelia's feet. We are so happy to have this behind us, but the next four weeks will be tough. She is not allowed to bear any weight on her feet for four weeks. For a little girl that has just started walking, this is devastating. She has been in plaster casts for the past two weeks to stretch her feet and tendons before the surgery and she actually got to the point where she could walk in them. I've included a video at the end of the slide show showing her walking. It's rather choppy, but you can get the jest of her attempt.
We covet your prayers for patience and acceptance during the next four weeks. I've been a little absent from blogging, I plan on changing that. Enjoy the photos from the hospital. They are a little grainy~must have had the aperture setting on.
Wednesday, July 16, 2008
Happy Adoption Day
This post has not come easy for me. I’ve agonized over what to include since I’m not sure of the audience. There are those that have never experienced a difficult child, or adoption and they can never begin to comprehend what this year has been like. I’ve even thought of not including a post since this year has been…well…less than stellar. However, there’s that part of my brain that understands the importance of said post. Ultimately, the most important person that will be affected by this post will be Amelia. Things need to be said so she knows and understands the importance and impact of this year on her and our entire family. So make the post I will with the caveat that it’s not meant to be anything more than a milestone that needs to be marked for my daughter’s sake. Like the content or not, it’s what the last year has been from my perspective.
July 11, 2008
I’d love to say this year has been a joy and delight, but that would be a lie. Those that know me, know lying is not an option. It’s been difficult and even grim at times. From the time we arrived in China last July, we have endured much more excitement than we planned for. From culture shock, early departures and disruptions, it was not exactly a happy trip. As anticipated, Amelia’s behavior in China was only a snapshot of what was to come when we arrived home. Amelia is a strong-willed child that wants what she wants and wants it now. If she doesn’t get it, she tends to voice her displeasure for an extended period of time. On a high note, that period of time has decreased from several hours to only several minutes of crying, screeching and whaling.
In her defense, I have to acknowledge the frustration that she has had to experience from not being able to walk. The weakness and nerve damage that she has in her legs has been far more than we anticipated. We’ve adjusted to this unforeseen condition and believe we are on the right track with her treatments. We will travel back to St. Louis this fall to start her treatments. We covet your prayers for all of us during this time. I’ll keep you posted when I know more.
I truly believed that we were prepared for the challenges of adopting a slightly older child and one that was in an extraordinary foster program. Amelia came to us very spoiled. I know that sounds contradictory to what everyone hears about Chinese orphans, but I would encourage you to check out Half the Sky. They have an amazing program in Amelia’s orphanage and Amelia definitely benefited from having the love and care of some amazing nannies. Believing I was prepared and then actually living through the experience are two very different things.
I believe I survived the guilt I was experiencing from the help and support of some very wonderful friends that I could open up to and that had experienced the same things with their biological children. This information helped to lessen the burden I felt over the “adopted child” label that I worried about. What a relief it was to know that Amelia not being my biological child had nothing to do with the struggles that we were encountering.
My social worker believes that Amelia is lucky to have us for parents. Her words to me were, “Isn’t she lucky to have you! If she would have had a first-time-parent, imagine the havoc she could have caused in their lives!” All I can say to that is, you might want to ask Amelia about that. But seriously, I have had to be very stern with her! It’s broken my heart at times, but I knew that if I didn’t stay the course, she would be running this house. And a two-year old running any household is not a good thing. I kept saying to myself, “If you don’t stop it now, what is she going to be like when she’s twelve???” Then all that would pop into my mind was some sort of “boot camp” for teens. Not a pretty picture my friends.
The physical impact this last year has had on myself has been nothing less than staggering. I have never weighed more, nor been in such rotten physical condition. I’m slowing getting into a workout routine and that is helping. The weight problem has to do with the “stress eating” that I have fallen in to. I’m not proud of the amount of time that my head has been stuck inside the freezer compartment eating ice cream directly out of the ice cream tub. I’ve laughed and told friends that there has been a lot of chocolate and wine consumed in our house over the last year. I said it jokingly, but there is some truth to the statement.
Our days are getting better. Amelia walking has helped her disposition tremendously. She clearly loves me and lets me now it continually. It’s rather sweet and I get so many comments from people about how much she loves me. I can’t leave the house for 10 minutes that she doesn’t chant, “Mommy, Mommy, Mommy” and ran to me when I walk in the door. She would sit on my lap constantly if I would let her. But again, I have to put limits on her or she carries a little leniency to the extreme and would stay on my lap all day long.
I believe she has adjusted to our family very well and fits in nicely. She’s going to be our opinionated, stubborn child. She can sulk with the best of them and we often laugh at her when she plops down on the floor and stares at us with that “I-just-might-hurt-you” glare. What she still hasn’t fully comprehended yet is that I am more stubborn and more strong-willed than she is. I refuse to have my life dictated by a two year old, so the war wages on. I can see the end in site, but it still might be some months out. This troop refuses to pull out ~ God has placed this child in my life for a reason and I intend to stick around for the long term. I have fallen in love with her and I believe that she truly loves all of us. She tells me she loves me daily! It’s music to my ears, especially when we are having a tough day.
This post has gone on enough…I limit myself to two pages in Word~ I’ve reached that limit.
I love you Amelia SiYuan Wells. I’m glad God is allowing me the privilege of being your mother. My prayer is that I continue to do God’s will in my life and in yours.
Running through the sprinkler together...
Monday, July 14, 2008
Beach Vacation
We just returned from a week at the beach...all six of us. We had so a great time...we hated to leave. Amelia was a trooper and enjoyed every minute of it!
Make a Smilebox scrapbook |
Thursday, July 3, 2008
Bug bites and bubble baths
Bath time has turned into a sporting event at our house. If I so much as mumble "bath"...the hysterics begin. Clothes begin to fly...feet shuffle to the stairs...voices become high pitched while squealing "bath,bath,bath". Mind you, this is all Amelia. Elise doesn't become interested in the bath until she figures out that Amelia is heading upstairs and she might possible get one of her "favorite" bath toys. Yowsa...
Finally, what's up with my kids and mosquito bites??? The first summer that Elise was home I took her to the doctor for what I thought was some sort of growth/reaction...it was a mosquito bite. Yep, boy did I feel stupid. Here I am...the mother of two boys ages 10 & 12 and I don't know what a bug bite looks like. But look at this poor child's cheek! This is TWO days AFTER the mosquito was shooed off the poor girls face. We try to make sure that they have on bug spray, but it was 4 p.m.~still way early! Lesson learned...all children must be appropriately doused with bug spray by 4 p.m. The sign is now posted in my kitchen
Tuesday, July 1, 2008
Summertime Playtime
Check out this video of Amelia's first attempt at playing hopscotch. She so wants to be like her Jei Jei!
It's a rather long video and there's lots of other "stuff" happening~that's just a small window into the things that go on at our house! It's rather interesting sometimes!
http://www.youtube.com/watch?v=Ln2kl9gS4QY
Sunday, June 29, 2008
And She WALKS.....
Yes, our little Miss Amelia is walking! That's right, she started walking with her AFOs on Wednesday, June 18th! It was so exciting and she was so beside herself with pride. The therapist was so proud of her! I was so shocked and surprised! We didn't even have to ask her to walk, she just looked up at me, smiled and started walking toward me. Suddenly, I felt this pressure in my chest. What could it be, I thought? Then I realized it was my heart, ready to explode for joy for my little girl. She fell into my arms and the pure delight on her face was something I will never forget! We hugged and laughed and cried all at the same time!
It really was one of those special moments that I will never forget! I'll never forget the smug little smile on her face right before she let go of the chair and walked to me. I'll never forget how that smiled changed when she fell into my arms and the transformation that followed. Amelia seems so much happier now that she is mobile. It really is amazing. Her gait isn't really pretty, for us, it's beautiful, amazing and incredible.
I talked to the doctor in St. Louis and they were thrilled to hear she is walking. They also said that the more she can walk without the AFOs, the stronger her legs will get!
So hip-hip-hooray for Miss Amelia~she's motoring all over the place.
I just can't stand how cute she is!!!
Friday, June 27, 2008
First Haircut
Friday, June 13, 2008
Riding the Carousel at the zoo....
Another trip to the zoo and Elise was adamant about riding the carousel this time. So, on the way out, we stopped and rode the carousel. I wasn't sure how Amelia would take it since she was clinging for dear life to my friend, Joan, on the train ride.
This shot is before the carousel started to move. Needless to say, she had her arm so tight around my neck I thought I might choke. With that in mind, remember that I am on the carousel with her. Are you getting the picture??? Yes, I was squatting up and down as her lion went up and down with Amelia's arm tight around my neck.
Tuesday, June 10, 2008
Cookin' with Cinderella
I've been promising Elise for days that we would make cupcakes. Since a "friend" had passed on a "friendship bread" starter to me 10 days ago, today was the day to make our friendship bread. So after yoga and after we picked up Tucker from summer gym, I helped Elise with the recipe.
Well, it didn't take long for Miss Amelia to want in on the action. Before I knew it, she had crawled right up on that IKEA stepstool and was right beside her Jie Jie "helping". It really was a sweet moment. Elise was kind and generous with Amelia and Amelia was sweet and giving right back. It was a rare moment as they tend to want to bicker a little bit.
Enjoy the video. My Cinderella's are learning to cook!
Make a Smilebox scrapbook |
Summer time....swimming time
Amelia has a new love....the swimming pool. I didn't think it was going to be so much of a hit with her on the first day. She was very resistant to being in the water without me holding her. But on day TWO...this is what we saw....
It was so refreshing to see that genuine smile on her face. As you can see, we are deep into the "What's that?" phase. She's also talking a ton. I can get a three word sentence out of her if I poke and prod. By the way...that sound in the background is not static. That is the sound of cicadas singing in the trees surrounding the pool. I didn't think we were going to get the little buggers this year. We were invaded about 4 years ago with a huge brood. But alas, they are EVERYWHERE around our house since we have long standing trees.
We have planned a family vacation to the beach. I can't tell you how much I'm looking forward to it!
Monday, June 2, 2008
Control, Control, Control
Yes, the battle continues. Just when I think that we are making progress and I grant a small liberty to Amelia~the battle for control starts to rage again. You would think that after ten months she would figure out that I won't give up!!! I can only imagine what the teen years will be like~maybe I'll be old and worn out by then!?! NOT!!!!
Here's the story...I'll attempt to describe this "event" with some humor. Believe me, it wasn't humorous at the time!
Saturday was Matthew's graduation from high school. The ceremony was in the morning and we were having an open house in the afternoon. The girls did not go~for obvious reasons~way too much confusion! So they stayed at home with their aunt. I decided to put Amelia down for her nap at the normal time and let her enjoy the last half of the party. My reasoning was that if I let her stay up until 2 p.m. then I might as well let her skip her entire nap~skipping naps is not a good option around her. It makes for grumpy and unpleasant toddlers.
I put Amelia down at 1 p.m. with little resistance (just the normal wailing when I leave the room). Unfortunately, people started arriving at around 1:30 p.m. and the noise level escalated way earlier than I expected. Naturally, Amelia voiced her disdain for the fact that she was napping when there was action going on in the house (she voices her disdain when there's no action) so this wasn't a surprise to me. As per my usual response, I ignored her "unpleasantness" since I refuse to acknowledge her nasty demands (it's more like screaming).
Fast forward about 30 minutes and I head to her room to change her into her party dress and take her down stairs. Imagine my surprise when I walk into her room and see her bare butt sticking up in the air as something drops from that bottom!!! Yes, she pulled her diaper down and pooed in her bed. This action still stuns me~I really don't know what to say about it. I still can't find any humor in it. If I had been even one minute later, who knows what kind of a mess I would have found. Fortunately, there was only a small amount of "stuff" on her brand new, very expensive brace! My head just spins when I think of it! Now imagine all of this happening when I have a house full of guests!?!
So I learned my lesson...I can't let her go to bed without her no-nos on. We put them on her so she won't undo her brace~if she undoes it, then she risks relapsing. A relapse is what we are dealing with now ~ which means more casting and surgery. As you can imagine, messing with the brace is unacceptable. But she continues to do so. She's a smart little girl~just very manipulative.
After this little "episode" I now know that she will pull down her diaper if she wants to. I guess that means she can pull her pants down for potty training. Looks like "Potty Training Boot Camp" is right around the corner!!!!
The battle rages on...it should be an interesting summer. Maybe the our one year anniversy will bring some progress~I'm not holding my breath!
Tuesday, May 27, 2008
New Brace and AFOs
Monday, May 19, 2008
Mother's Day 2008
Battle of the Brace~sleeping~CONTROL....
Markell shoes on a Denis Brown Bar
Which brings me to my next topic....the dreaded brace that she wears 14-16 hours a day. It's a wonderful contraption~unlace, loosen bucket, force chubby foot in, wench down buckle, re-lace and wah-lah, you are finished. Can you hear the sarcasm???? Steve HATES this thing~he actually breaks into a sweat when he tries to put them on Amelia. I have sort of mastered it and can whip through it rather quickly.
Nice screw....wrecking havoc on my hardwood flooring....How does a little girl get that off after I wench it on. Do I need lock tite???
Amelia doesn't fight us on the brace. Well, not really~she uses a more passive aggressive way to fight us. She will bang the shoe/brace against the floor, mattress or whatever to loosen the massive screws on the bottom and then she takes the shoe off the brace. Imagine my surprise when I check her before I go to bed and find her shoes unscrewed!?!? It's very irritating.
I'm also a huge stickler on her wearing the brace 14+ hours. Honestly, she should probably be wearing them around 16 hours. We usually get 12 hours at night and then 2 hours at nap time. So I've been extending the time in the morning and right after nap time. It's been working out o.k.~but it means that I have to put the brace on her at around 7:30 p.m. since she is an early riser. Not such an easy task since summer is almost here and it's daylight until 9 p.m. So now the brace has been going on later at night which translates into wearing it later in the morning. Do you see wear I'm going with this???? Needless to say, we are in another transition phase that hasn't been much fun.
The new Dobb's brace is in and we will be getting it fitted this week. Amelia will also be wearing AFOs during the day and hopefully it will assist her with walking. If you do go to the link to check out the brace, know that there is some controversy about the bar and this video. If you know anything about braces and braces, the second brace is clearly too small for this little girl which will cause her to be uncomfortable. Amelia can crawl like a champ with this bar and she can stand quite well.
There is also another site you can check out . This is a family with three children~all born with club feet. She is a tremendous resource for families that are dealing with club feet. The biggest difference for us is that Amelia did not have the benefit of treatments during infancy, which is what US born babies get. Amelia was living with her feet for 16 months before any treatments. So the protocol is slightly different~like wearing AFOs during the day. Many people would say that this is not appropriate procedure. But since Amelia has nerve and tendon damage~her case is different. On and on I could go about the different perspectives.
So we are moving forward with the brace and AFO until we have the tendon surgery in the fall.
Friday, May 16, 2008
Earthquake in China
I'm sure many, if not most of you, have seen the international headlines about the earthquake in China. Amelia is from Sichuan Province, Chengdu, to be exact. The epicenter was about 60 miles from Chengdu. Half the Sky is the US agency that provides programs for the children many orphanges around China. Amelia's orphanage happens to be one that benefits from the work of this great organization. HTS has been sending daily updates to anyone on their mailing list. This is the latest update that I have received....
Dear Friends,
I dearly wish I had more good news to report. The very best thing I can tell you is that we have not had a single report of injuries from the welfare institutions.
As of this morning (Friday) there were 19,509 people confirmed dead. The State Council today said there will likely be more than 50,000. Today’s government report describes one terrible scene after another: thousands homeless, thousands missing, thousands injured, thousands trapped or buried alive. Hope for survivors is dimming. There is an urgent call for body bags to prevent the spread of disease. There have been over 4,400 aftershocks.
HTS Director, Child Development, Ma Lang has arrived in Chengdu and sends this note:I am deeply touched by your moral and emotional support. I only slept twoof the past thirty hours. The first thing I did after landing was todonate some medicine to the Chengdu Red Cross. It was very much appreciated – exactly what was needed. They gave me a wish list for further donations: antibiotics for children and adults, medicine for diarrhea, cold capsules (not instant medicines that must be mixed in water), bandages, gauze, tape, iodine, cotton swabs, herbal medicine to stop bleeding and some for pain relief. Other much-needed donations include tents, tarpaulins, warm clothes and shoes. People in Chengdu are doing everything they can to help with the earthquake rescue. I saw all sorts of vehicles carrying things to the donation centers. I registered for blood donation and was put on the waiting list – the blood center was overloaded with donated blood and it’s difficult to transport the blood to the hardest-hit areas. More to come… Lang
Here is the confirmed information we have regarding welfare institutions:The following institutions not mentioned in yesterday’s note suffered no serious damage:Chengdu 2nd SWI, Chengdu 3rd SWI, Ziyang SWI, Neijing CWI, Chengdu SOS children’s village, Leshan SWI, Ganzi CWI, Guang’an SWI, Suining SWI.
The following report damage, but, again, no injuries. Your generous donations will help meet all of these requests for assistance:
Bazhon CWI – Severe damage to building; children are fine. Meishan SWI – Cracks in buildings, have evacuated all children (50+) to tents. They have adequate food, water and clothes but request 20 cribs and bedding. Guangyuan SWI – Damaged buildings, all children have been in tents for 4-5days, often in the blazing sun. They request food, baby formula water, diapers, bedding and other daily necessities. They urgently need drugs and food supplements to protect against disease and heatstroke.
Nanchong SWI – There was substantial damage to buildings, all children (100+, more than half under 6 years-old) are living in tents. They need more tents, disposable diapers, children’s clothing, wagons, cribs and bedding.
Deyang CWI – Dormitory for school-age children was severely damaged. Although the other buildings seem fine, pending inspection, all children and staff have been moved to tents. There has been constant rain and much that was pulled from the buildings has been ruined. They request bedding and children’s clothing. They still have disposable diapers left from our assistance during the winter storms but will be running out of those as well as infant formula in the coming days.
Mianyang Zitong CWI (update) – Children have been moved back from the military base to a safe building in the institution. There is adequate food and water but they request clothes, bedding, infant formula, diapers and medicine for colds. They are now caring for 66 children, 23 of them under 2 years.
Sadly, 24 new orphans – earthquake survivors - arrived at the institution yesterday. We are still unable to reach these orphanages: Abazhou CWI (52 children) and Mianzhu SWI. Please give what you can to help the children who survive go on with their lives.If you would like to donate to Half the Sky’s Children’s Earthquake Fund,it would be great if you would do so at Global Giving.
My apologies forgiving incorrect information yesterday; the Ford Motor Company is generously matching EMPLOYEE gifts to Global Giving, not ALL! Still, it is an easy and convenient way to make a donation and helps HTS by handling processing of your gifts. Now maybe some other corporation would like to step up and match ALL donations?!http://www.globalgiving.com/pr/2100/proj2086a.html
If you prefer to donate directly to Half the Sky, of course that’s fine.Here are the various ways: You can donate by calling Half the Sky (+1 510525 3377) or on our website:http://give.halfthesky.org/prostores/servlet/Categories?category=Children's+Earthquake+FundIf you would like a Canadian tax receipt, please donate athttp://www.canadahelps.org/CharityProfilePage.aspx?CharityID=s86248If you would like a Hong Kong tax receipt, please call us at +852 25205266 or online athttps://www.paydollar.com/b2c2/eng/charity/payInfo.jsp?charityId=4947Thank you for your tremendous support. Although it is heartbreaking towrite these reports, we are so honored to be in a position to help duringthis terrible time.
with love,Jenny
Jenny Bowen
Executive Director
Half the Sky Foundation
www.halfthesky.org
Half the Sky was created in order to enrich the lives and enhance the prospects for orphaned children in China. We establish and operate infant nurture and preschool programs, provide personalized learning for older children and establish loving permanent family care and guidance for children with disabilities. It is our goal to ensure that every orphaned child has a caring adult in her life and a chance at a bright future.
It really is a horrible situation. So many people in such a small area can only mean that injuries and the death count will continue to climb. Join me as we pray for everyone's health and safety in China.
Wednesday, May 7, 2008
Another trip to St. Louis, another unexpected outcome
Thursday, May 1, 2008
Almost walking....
She likes the step stool
See how her feet are not flat....try not to notice the "budda" belly :-)
Our next doctor's visit will address this problem.
Look at that face. She is so shocked, but excited!
Trying to take a step....
She does a great job catching herself
I'm sure she will be back in casts next week. I'm also pretty sure that she is going to be less than pleased. We covet your prayers during this time....for ALL of us!
Wednesday, April 30, 2008
Digital Scrapbooking
I've been playing with Photoshop and created this....
It's a photo of the girls at the zoo.
We are getting ready to head to St. Louis again. I'm sure there will be casts this time, at least I hope so.
On a positive note, Amelia has been standing a little all by herself. She can balance for about 10 seconds or so. Then she tries to take a step and falls. She will only try to stand if we ask her to. So, it's been a good week for her. I'd post a photo but I can't get to the camera before she falls.
Tuesday, April 22, 2008
EMG test results~from a layman's perspective
Yesterday was the big day for Amelia to get her EMG/Nerve conduction study. To say that I was worked up over it is an understatement. I hardly slept the night before last and I was a bundle of nervous energy all morning. I much prefer having test done in the morning~gets them over with! But alas, our appointment was at 2:45 p.m. I started to post last night, but I was so emotionally exhausted that I just sat outside and watched the girls play and then it was couch potato time to watch American Idol and DWS Results.
I was able to talk to the nurse in St. Louis to make sure I had the necessary information for the test and she did tell me that there were particular things that Dr. Dobbs would be looking from the test. She also said the test would not change Amelia's treatment plan, it would let them know if she would be more likely to relapse after treatment. Now I was really confused. I couldn't really understand why we waited to start the treatment, but it's too late now. This just goes to show how shocked I was when we got this information in St. Louis. No sense crying over spilled milk, if you will.
Naturally, they requested that we arrive 15 minutes early to "fill out" paperwork. So we arrived 25 minutes early since you never know how expressway traffic is going to be in Cincinnati and on the surface streets are always a crap shoot. Let me start off with saying one of my biggest pet peeves is having to wait around for a doctor. Drives me insane~especially when they tell you that if you are 15 minutes late for your appointment, you will need to reschedule. This is how the timing went:
3:15~called back to room by assistant. Room is very small for two parents and one toddler~big machine in middle of room, extra big bed~not your normal hospital bed (this was in a rehabilitation area so I image that many patients need the extra space on the bed). I can already feel Steve tensing up since he is claustrophobic. Can you see where this is going????
3:30~nurse arrives and starts asking us questions. The best question was, "Are you her legal guardians?" Oooh~I hear all my friends gasping, because you know me~I've got a bit of a "smart" mouth. O.K, I've got more than a smart mouth, I'm downright obnoxious sometimes. You know all those "thought bubbles" most of you have but keep them to yourselves? My thought bubbles EXPLODE and the words just pour out into the room much to every one's surprise ;-). I just stared at her for a few seconds with this look on my face, "are you kidding me?", it was a rather pregnant pause. Then I just answered, "yes". Again with this look on my face~"That was a really STUPID question!"
She was a very kind nurse. She just oohed and aahed over Amelia~"She's so sweet!" All the while I'm gritting my teeth because we've had one of those mornings where nothing has please Amelia and she spent most of it crying. Actually, most of it would be an understatement. By the time I changed her out of her PJs, she had cried so much that her pants were went from the tears and slobber dripping down from her face. She just took an ugly stance yesterday and wanted to be carried everywhere I went. Sorry sister, get those legs moving and build those muscles. Besides, my back is finally feeling great and I don't want to regress any.
3:40~nurse returns with the sedative to help her relax. She tells us she won't be put out, just relaxed. I'm beginning to freak a little bit since Amelia has has about a 20 minute nap. She also states that it takes about 20-30 minutes for the sedative to take effective and then the doctor will be in. Are you doing the math here????? Fortunately, she put a Dora video in for Amelia and she sat in her stroller and watched it. It didn't take long for it to hit her since she was so stinkin' tired to begin with. I didn't take my camera but I had my phone so these shots are from that. Not very good, but good enough.
4:10~doctor arrives WITH a resident doctor. Now there are five of us in the room~it's really really crowded now in this tiny room. We got through a series of questions~blah blah blah. I tell him what the doctor in St. Louis needs to know and he told me that it was stated on the referral, so I can relax over that little tid bit. They ask one of us to hold her during the test, we start to "paper-rock-scissors" for the job. The doctors were just staring at us like we were insane.
Monday, April 21, 2008
Tomorrow
Getting ready for the big "cry", baba told her "no" about something...
The EMG test consists of two parts:
Nerve Conduction Study / NCS which evaluates the speed and amount of electrical activity along a nerve
EMG study which looks at electrical activity in muscles at rest and also when they are voluntarily moved (if possible) to determine if the pattern of activity is normal
There are many things about this test that make me very uncomfortable~electrical current being sent through the muscle & pin electrodes being stuck in the muscle. ICK~this is going to be a real bummer for both of us.
I'm making sure that they will sedate her~otherwise, they will have big problems with me and Amelia. I'm talking sedation for both of us too ;-)
I'm learning to edit my photos....can you see the difference? This one isn't the best, I'm still learning!
I failed to ask the doctor in St. Louis how this test will impact Amelia's treatment of her club feet. Chalk that up to travel fatigue and shock at not being familiar with this procedure for club foot babies. But I am awaiting a call from St. Louis to explain all of this to me.
So please pray for an easy test tomorrow and that the doctors will find no abnormalities. To be honest, we think Amelia may have some neurological problems. She is not walking yet and we had hoped she would be. She has been out of the brace for four months now. Her strength is improving and she does balance while standing, but still no steps. Steve and I are not pessimist, just realistic. We are just trying to prepare ourselves for a different path than we originally anticipated. But we pray we are wrong and that Amelia just needs some intensive PT to get over this hump. That's another problem with older children and club feet, doctors in the US are accustomed to treating infants and not toddlers. This is due to the fact that we seek and receive medical treatment for this condition as soon as a child is born. Consequently, the doctors in the US do not exercise a different treatment protocol for older children and I have discovered it is different. Hence the reason we are now going to Dr. Dobbs since he does in fact treat older adopted children from other countries as well as treating children that have had incorrect treatment for club feet.
Digressing a little here....Dr. Dobbs uses the Ponseti method for treating club feet. Dr. Dobbs and other doctors around the US a treated by Dr. Ponseti himself in this method. It is very specialized and many doctors do not execute it correctly. Therefore, it's imperiative to locate a highly recommended doctor to treat your child. When we returned from China, we did have a doctor that was trained in the method, but she moved to Utah.
Amelia isn't feeling the greatest right now, she has a cough and a temp. Pray that she is well tomorrow and they will still perform the test.
Off to preschool with Elise!
Thursday, April 17, 2008
Blingin' my blogs...
My blogs are dull and boring. I use the templates provided by blogger since I don't know any better. But I've been following a few blogs that are just so pretty and I love looking at all of their new "stuff". So I decided it was time for some changes.
I've tried to find someone to bling my blog. But I get no response to my emails. I guess they are just overwhelmed with requests. So I decided I was going to give it a try. This is my first attempt. I'm going to try my hand at making a new Header tomorrow. It should be fun because it will involve digital scrapbooking and my new Photoshop software.
Woohoo...just another reason to be on the computer.